Tuesday, January 31, 2012

Big updates

I know it has been over a month since I last posted. There was some travel for the Holidays and then getting back to life afterwards. Nothing has really changed with Ella's incision since last time. It's still infected. I'm not sure if she still has a staph infection or if that has cleared up and it's a new infection, but it's still looking bad. Her ENT gave us a months worth of oral antibiotics to take over the Holidays. The incisions did look like they were healing and then they stopped and reversed. I don't know what happened but one day Ella woke up and they had started becoming puffy and red again. Now it is almost the end of January and I have had it. No more antibiotics and no more waiting. We have an appointment with her ENT this Friday. I am taking Nathan with me to make sure that something gets done. I am not taking home anymore antibiotics. I am okay if they have to admit her back into the hospital or if they have to go back into surgery and flush it out. I just want something done that will fix this. I am tired of putting her left processor on her shoulder. She should be able to have both of them on her ears. I am also disappointed with our ENT. Everyone that I have talked to that knows him has said how he is a great ENT and one of the best CI surgeons. And I thought how wonderful that is going to be. But now I don't want to see him anymore. I am just to frustrated and disappointed in how he has handled this.

In other news, Ella is doing great with her CIs. She doesn't mind wearing them in fact I think she actually enjoys wearing them. I know she's hearing more because she has been making sounds that she has never made before. I caught her the other day making a "th" sound. I was amazed. She wouldn't let me get it on video though. :( Every time I take my phone out to video her, she wants to play with it.

Shaun hasn't been doing so great though. Ever since we came back from Va he has had a rough time in school. He is not listening to the teacher and she says he just shuts down and won't listen. For the last two weeks I have been called to come pick him up. This last week he was only in school for 2 and a half hours. I don't know what to do anymore. I have tried disciplining him and nothing is working. I have taken toys and games away and I have sent him to his room for the rest of the night. He doesn't like it and it seems to work at the time, but then when he gets in school, it all goes out the window.  My brother-in-law keeps telling me he is just stubborn and that I am going to have to "break" him, but I have a feeling it is more than that. There are some little things that are (for lack of a better word) weird about Shaun. He doesn't act like a normal kid. I am not sure if there is anything there or if I am just thinking there is. I called the school district to see if they will do a full assessment on him. When he had speech problems when he was 2, they did one. The lady said that they needed it in writing and then they would proceed. So I just have to email them with some basic information and then we would start. A part of me wants there to be something "wrong" so that I will know how to deal with it and also so that I can say it's not me. I don't want it to be because I have not done my best. I have been working with him on what kind of behavior is not okay in school and I am hoping it helps. I have also started praying with him before school. I don't know why I hadn't done that earlier. It seems like such an obvious thing to do.

We went to Ella's ENT appointment and he said that she has been on enough antibiotics and he has go to in now and take out the skin on that area of the original incision and then close it back up and hopefully it will heal right. He sounded pretty urgent so he said it will be done Friday. She will have to be put out, but it is outpatient. I am hoping this will be the end of it. Thank you everyone for your prayers.