Ella's Journey to Hear the World
Friday, June 22, 2012
Moving on to bigger and better things.
Wednesday, March 28, 2012
Another surgery..
Since she has gotten out of the hospital, she has been doing great. The incision has been healing beautifully. There is still the red scar there, but that won't fade until later. The other side that still has the implant has healed and the red scar is gone. We had follow up appointments afterwards with the ID (infectious disease) doctors to make sure the infection is gone this time. She was on oral antibiotics for about 2-3 weeks afterwards and it seems the infection is gone. They are going to put the implant back in so we have another surgery scheduled. It's going to be on April 6th. Since we have been through this we know what is going to go on and aren't nervous. I am nervous about the healing though. I am just hoping the healing process will go smoothly and we won't have to deal with this again.
Since being initially implanted and activated Ella has been making more and more sounds. Her teacher and I are concerned though because she hasn't been imitating any words or anything close to words. She said she should be doing this by now. We are a little concerned, but not a lot since it is still early and she has been through a lot with her CIs. I am hoping that she will start after her second one is activated (again).
Shaun has been doing great in school. He had one good day, which I knew was all he needed, to get back on track. He has been great in school since. We are still going to have him evaluated by the psychologist. It is scheduled for Monday. I am a little nervous but I know if anything comes from it that it will only help him.
Tuesday, January 31, 2012
Big updates
In other news, Ella is doing great with her CIs. She doesn't mind wearing them in fact I think she actually enjoys wearing them. I know she's hearing more because she has been making sounds that she has never made before. I caught her the other day making a "th" sound. I was amazed. She wouldn't let me get it on video though. :( Every time I take my phone out to video her, she wants to play with it.
Shaun hasn't been doing so great though. Ever since we came back from Va he has had a rough time in school. He is not listening to the teacher and she says he just shuts down and won't listen. For the last two weeks I have been called to come pick him up. This last week he was only in school for 2 and a half hours. I don't know what to do anymore. I have tried disciplining him and nothing is working. I have taken toys and games away and I have sent him to his room for the rest of the night. He doesn't like it and it seems to work at the time, but then when he gets in school, it all goes out the window. My brother-in-law keeps telling me he is just stubborn and that I am going to have to "break" him, but I have a feeling it is more than that. There are some little things that are (for lack of a better word) weird about Shaun. He doesn't act like a normal kid. I am not sure if there is anything there or if I am just thinking there is. I called the school district to see if they will do a full assessment on him. When he had speech problems when he was 2, they did one. The lady said that they needed it in writing and then they would proceed. So I just have to email them with some basic information and then we would start. A part of me wants there to be something "wrong" so that I will know how to deal with it and also so that I can say it's not me. I don't want it to be because I have not done my best. I have been working with him on what kind of behavior is not okay in school and I am hoping it helps. I have also started praying with him before school. I don't know why I hadn't done that earlier. It seems like such an obvious thing to do.
UPDATE:
We went to Ella's ENT appointment and he said that she has been on enough antibiotics and he has go to in now and take out the skin on that area of the original incision and then close it back up and hopefully it will heal right. He sounded pretty urgent so he said it will be done Friday. She will have to be put out, but it is outpatient. I am hoping this will be the end of it. Thank you everyone for your prayers.
Friday, December 9, 2011
Back to the Hospital
After her first round of IV antibiotics. |
I can hear!
Thursday, October 27, 2011
It has finally arrived: Surgery Day.
The next morning she was definitely feeling better. She kept down some toast and juice/water for breakfast and had some cheerios for lunch. The "helmet" as Dr. Ishiyama called it was starting to bother her and she made several attempt to take it off. She finally got the hint that I didn't want her messing with it. Again the whole day she cuddled with me on the couch. By the third day she was back to her smiley self and wanted to get down off the couch and play. The helmet on her head was so heavy that is made her wobbly when she walked so we sectioned off a part of the living room so that she didn't get to the tile in the kitchen. I didn't want to her slip on it and hit her head. She didn't like that her playing area was so small.
Sorry these are all cell pics. I (again) forgot to charge my camera battery even after talking to my Mom about it. lol |
Friday, October 7, 2011
Almost here.
Tuesday, August 23, 2011
A Date!!
Monday, August 22, 2011
So close we can almost taste it
So Friday we got a letter from United Healthcare saying that they had approved everything and it's all covered for Ella's bilateral cochlear implants. As soon as we read it we called UCLA to see if they had gotten the letter too. They hadn't but the lady said that she would call them and get it within the hour. We tried to schedule the surgery then, but the lady that schedules was on vacation and wouldn't be back til Monday. They also had to ask the ENT how long it would take so that they had a big enough block of time to fit her in on the schedule.
Now it's Monday and Nathan has been trying to get a hold of the scheduling lady. I know she is probably busy, but it's still a little frustrating when they don't pick up the phone or call back. We will just have to wait.. again.